Not in control of your healthcare data? Think again. Take control with The Sovereignty Network
We’re creating a healthcare app that’s accessible worldwide that enables patients to compile and own a copy of their own healthcare records and we need your help. The product is completely operational and has already been tested with experienced patients, patient advocates, clinicians, and data researchers. We now need your support to finish the app and make a major positive impact on the health and welfare of millions of patients worldwide.
Every time you “post” something, or “like” something, or “engage” with most any digital platform, you – and all of us – work on behalf of large data companies – for free. We don’t share in any of the massive financial benefits from our work.
We ARE the product.
The ONLY thing we get in return is all those unsolicited, aggravating advertisements that we all seem to love to hate.
Your data is already sold without your knowledge. It has been hard enough for you to access, let alone “own” your data. Until now.
It doesn’t matter where you live, or how smart, successful or connected you are. You probably don’t have a copy of much of your healthcare data, and you almost certainly don’t own a copy of it.
But you should.
We have built a remarkable platform and community to solve this for you and put you in charge. Designed initially for healthcare data, The Sovereignty Network already works.
Expert patient advocates have given it their approval and healthcare researchers and clinicians are excited by how it can assist them.
But to make this successful we now need your support to put people around the world in charge when it comes to owning a set of your data, and controlling it on your terms.
They can’t. Frustration, anxiety, and compromised health outcomes are often the result. The fact that others are profiting from your data rather than yourself compounds the inequity of the situation.
The Sovereignty Network can solve this problem for you.
Are you confident that you are making the most informed decisions with your healthcare provider about your health?
How much can you really remember of all your past medical records?
Help build the most useful and valuable records that exist about you and your family anywhere, including hospitals and doctor offices.
What about trying to gather and the haul around the healthcare data for an aging parent?
Most people will say “Why can’t I have an app with a copy of my healthcare data like I do for everything else in the world?!?”
The time has come to lose the large stacks of paper files and records kept in multiple locations. Put it where it belongs — at your fingertips. The Sovereignty Network allows you to collate and access your medical records in a digital format. You can then provide access to those records (yours or those of a family member) to healthcare professionals.
Instant access to that data can save valuable time when a loved one is in pain or at risk. Along with your health records, you will have access to our online community of like-minded people who can help you get what you need… be that advice, support or friendship.
Find support. Reclaim control. Take back your Peace of Mind.
Millions of patients desperately need an accurate and complete copy of the healthcare data – that they own as their personal, portable asset.
Whether that is you, or someone you know, help change the world of someone with illness forever.
Read on to find out why and how this is a good idea – and feel free to forward it onto others
The Sovereignty Network platform makes it easy for you to get and build a clinically encoded copy of your healthcare data to own as your personal asset, and make your copy the most valuable data set about you, available anywhere.
You can earn the financial compensation that your healthcare data set is worth – rather than letting big tech take all the value for themselves. Moving forward you will also be able to license specific data points of your clinically coded Sovereignty record to vetted researchers for your financial compensation, or else donate it to healthcare causes you support. It is completely up to you.
Ultimately this network will be network owned & governed by its members.
A data democracy that works for both individuals and entire populations. A Movement “of the people, by the people, for the people”.
We built The Sovereignty Network from the start with the conviction that this has to be available to everyone in the world, under all circumstances. So for the past couple of years, we have worked in Rwanda, South Africa, and now Kenya to prove it.
With our system now working, we are undertaking a 1,000-person trial in Nairobi, Kenya, with our clinical and research partners on the ground. The Sovereignty Network will enable trial participants to be paid for filling out Real World Evidence surveys for global Pharmaceutical company researchers.
We call this “bridging the middle wilderness,” making global research more efficient, to the direct benefit of the participants.
The same problems of inefficient research apply all over the world. We are offering this opportunity globally to individuals no matter where they are, via this Kickstarter campaign.
In March of 2022, we co-presented our Rwandan results at the largest healthcare IT conference in the world, HIMSS, held in Orlando, Florida, USA. Partnered with SNOMED International, the world’s best clinical terminology, you can see the YouTube video of our work in Rwanda on our website.
At Rwanda’s biggest Community Health Center we transformed workflow from paper files to collecting structured medical data directly with patients at the point of care via an iPad. The Community Health Workers described our product as “the biggest healthcare technology breakthrough in Rwanda for a decade”.
By supporting this project you will also be helping people through all of Africa and other developing nations build, own, control, and financially benefit from their healthcare records.
SNOMED International and The Sovereignty Network are pleased to share news of an alliance to address child and maternal health in Africa through Sovereignty’s “Ejo Health” SNOMED CT encoded application.
Our Kickstarter campaign now includes a new Sponsor pledge that will give you the opportunity to be someone’s hero. The 94 USD pledge gives you the ability to help your nominee compile their health data into one persistent set of records that could one day help save their life.
Millions of patients need our help with their health records. You can help make a difference worldwide or sponsor someone you know locally. The choice to make a positive difference in people’s lives is yours to make.
- You own your own personal data and only share it with people you specifically choose to.
- No one else has access to your personal data. You are in charge.
- Data coaches who help and support you are vetted professionals dedicated to maintaining your data anonymity.
- The Sovereignty Team have been building healthcare data applications and protecting people’s private health data for many years in a wide range of healthcare settings around the world.
- We follow international security best practices, including all best practices from https://owasp.org/
- The core element of our underlying infrastructure is Aidbox, a powerful backend development platform specifically for modern healthcare applications, using FHIR as the foundation. Aidbox provides lots of useful security features – you can find more information here
- Audit logs and access controls are a core element of security at The Sovereignty Network.
- For all external connections, we use HTTPS with TLS encryption.
We are a technology platform that brings together consumer-patients, healthcare professionals, and data researchers to create individually-owned digital health data and medical records. This real-world data is available to researchers on a worldwide scale, but only with explicit permission by each of our Data Owners (you).
We offer wide geographical and deep demographic representation in a mutually beneficial, transparent, and democratic manner.
We work with some of the world’s most respected healthcare data experts and organizations. In partnership with the world’s best clinical terminology, SNOMED CT, and using international data standards like FHIR that make it easier to share medical data, we have already used a version of our product in Africa during the pandemic. This effort allowed healthcare workers to collect medical records and screen their patients right on the ground.
Our product was described as “the biggest healthcare technology breakthrough in Rwanda in a decade.”
Whereas SNOMED CT is like the letter inside an envelope, written in the language of health, FHIR for healthcare is like the address on an envelope showing where the health data needs to go. The Sovereignty Network has brought these two premium health data standards together, working in harmony to power our data sets. We also have the distinct honor of having Grahame Grieve, the inventor and “Father of FHIR” as an advisory board member of The Sovereignty Network.
SNOMED International and The Sovereignty Network are pleased to share news of an alliance that has started to address child and maternal health in Africa through Sovereignty’s “Ejo Health” SNOMED CT encoded application.
In March of 2022 at the HIMSS 2022 conference in Orlando Florida with our alliance partners, SNOMED International. The Sovereignty Network’s Hamish MacDonald and Nick Egarhos of SNOMED International presented “Delivering Health Outcomes in Africa From the Grass Roots” on Thursday the 17th of March.
Click here to check out the presentation…
The majority of healthcare data apps and online data websites today are mostly limited to point-in-time, clinical information collected in your hospitals, doctor’s offices, and your current insurance companies.
No other healthcare data platforms do what we do…our unique key success factors are:
Access to your healthcare data from multiple sources, from any time, anywhere…not just your current doctors, clinics and hospitals. The Sovereignty Network gives you the most comprehensive healthcare data set possible.
“DCPLEG”
Demographic, Clinical, Psychosocial, Lifestyle, Environmental and Genomic data – adding to full a 360-degree view of your medical profile. The more you fill it out, the more complete and more valuable your health record will be! The DCPLEG categorized questionnaires give you a complete picture of your health data as well as improve the portability of your health information and more positive medical outcomes.
The Sovereignty Network Community
The Community is the social aspect of Sovereignty that allows you to engage with like-minded people from around the world. You will find topics and information, and be able communicate with people that interest you or can be helpful for you to build a more valuable data set.
Data Coaches
The Data Coach plays a crucial role in helping the Data Owner (you) build a valuable data set and a comprehensive medical record. Data Coaches also provide data verification to data researchers by ensuring the data sets are reliable.
We work with experts
We work with some of the world’s most respected healthcare data experts and organizations. In partnership with the world’s best clinical terminology, SNOMED CT, and using international data standards like FHIR that make it easier to share medical data.
Why do we need your support in a crowdfunding campaign? We don’t want to take venture capital money. As the network grows, our goal is to transition to being member-owned and governed.
A decentralized global network is the aim. At that point, members should own The Sovereignty Network proportionate to the value each member has contributed.
We think this is the right thing to do, and it’s easier to do if the company stays held by founders dedicated to making this happen.
Why do we need your support in a crowdfunding campaign? We don’t want to take venture capital money.
Join us in a global Movement; a healthcare data economy built for patients, and those that serve them.
Our commitment to each of our early supporters is to help you build and own a valuable healthcare record, wherever you are. The majority of funds raised will go back to each person who pledges, in the form of personalized service from professional and vetted Data Coaches to advise and help you to build a valuable data set in a completely secure and safe environment that belongs only to you.
The remaining funds help continued product, platform, and people development to offer more capability to more customers, in less time.
The product is completely operational and has already been tested with experienced patients, patient advocates, clinicians, and data researchers. We now need your support to make this Movement a reality and make a major positive impact on the health and welfare of millions of patients worldwide.
